Girls Best Furry Friend

My dog has been there for me through thick and thin for the last 16 years. I know she wouldn't be around for ever but for the time being she is my perfect companion. She listens to me, she loves me, and she doesn't see my syndrome as a down fall. I hope that one day when she is gone I will find a man that treats me just as good. 

Hard Head In Need Of A Softener

So I can be very hard headed and very sassy most of the time. The thing is though that I don't know how to stop it sometimes because I also have no filter when it comes to my mouth:) Now these three things alone in a girl are hard for guys to handle, but throw in my syndrome! It makes me wonder if I'll ever find the right guy that will be able to handle all my craziness!! 

Mini Me Or Taller Than Me?

So going along with my previous post about children, I recently found out about the test that doctors can do to see if your potential children will have escobar syndrome. Then if you decide you don't want your future child to have the syndrome you can weed out the potential syndrome produced children and choose the potential children that will be completely normal. Now since I have a 50% chance of my child having this I was relieved to hear about this test because honestly, I am not sure that I want to have a child with the same syndrome as me. I know what I went through growing up. The surgeries, the teasing, the limitations, the internal battle with wanting things you can't have. I honestly can't imagine having a child that would also have to go through all this. But I also know that if my husband and I decide to have a child with this syndrome, I will be fully prepared and blessed beyond belief to have a child with escobar syndrome.

Child Blocker?

I have been thinking a lot lately about how I'm not going to ever be able to get pregnant. It's not that I'm not able to it's just that if I did with my 25% lung function I could die and I don't think that would be very good. But all joking aside I wonder if this is going to affect a guy's decision to date me or marry me. Will it make him upset that he woulnt get to see his child grow inside me? Will he be uncomfortable or upset that we will have to borrow another woman's body to grow our baby? I only know one thing for sure. If he is not okay or accepting of this limitation in my life, then he doesn't deserve to be in it and he is not the man for me.

Hunter of Food

I have an immobile pallete due to my syndrome so when I choke on food, it becomes troublesome trying to get it out. So because of that I avoid foods I have choked on in the past. Will a boy understand this? Will he be excepting of my picky food habits? I just hope he woulnt judge me to harshly on my Cheeto addiction! 

Fictional Man of Gold

I have been reading lots of books this summer and I am in this particular romance series that I am enjoying. All the books are pretty much the same cliche stories. Boy and girl date, girl falls in love with boy, girl tells boy, boy freaks out, boy runs away, and then in the end boy realizes he loves girl, boy runs back to girl , professes love. Boom. Happily ever after. Now each of these books throw in a problem that the girl has, whether it's that she's a single mom, has issues with her father, has issues with past relationships, or has issues with the boy in the past. I get to the end where the boy accepts these flaws and loves the girl inspite of said flaws. Now what I want to know is if my syndrome is a flaw that a boy could get over? Will a guy be able to look past my disability as if it were a past relationship gone bad that I couldn't overcome? When will a book be written about the girls with disabilities who don't know if their prince charmings are out in the world? 

Driving Him Crazy

I love to drive my car! I have it all adapted for me with the pedal extensions and the raised seat cushions. Now when my friends and I go places I always want to drive because I can't reach the floor boards when I'm sitting in other people's cars and it uncomfortable. But when I start dating someone I want him to be driving us places fulfilling his manly duties. I just don't know how crazy it's gonna make him for me to sit on the edge of my seat in his car while he's driving, cause that's what's gonna end up happening!